Wee Ball

Cody is playing Wee Ball. It is Tee Ball for 3-4 yr olds. Two Saturdays ago was opening day. They announced each team and all of the players. Cody is on the white team and he is #9. He was so proud to hear his name called out. He loves it so far. He is doing really good hitting and learning to field the ball. It is very comical. It is not uncommon to find several of the players playing in the dirt, run to the wrong base or refuse to play. The point of Wee Ball is for the kids to have fun and for them to get introdued to the game. Carter loves balls and he wants so bad to be on the field with his Bubba.

Dr appt's

Carter had a follow up ENT appointment. He had tubes put in back in September. His ears drain all of the time and he has continued to get ear infections. Dr Phillips does not feel like the tubes have worked as well as they should have for him. Dr Phillips discussed taking Carter's adenoids out and replacing his tubes. He is not sure if that will correct the issues. I was not comfortable all of this. The boys both had a follow up appointment with Dr. Butcher. She wanted to see Carter after his hospital visit and see how the boys were doing. She discussed the results of several test that were run on the boys. So far all test results have come back normal. They have been testing the boys for metabolic/genetic diseases. So far so good. PRAISE GOD! Dr. Butcher does not feel like Carter needs to have any surgery at this time. She does not think he needs his adenoids removed now. We are going to hold off on that at this time. We have had a good week this week with no sickness. Keep praying!

Carter gets to go home.

Carter was discharged late Saturday! He was finally acting more like his normal sweet little self. The doctors still do not know what is causing Carter or Cody's episodes. They both have follow-up appointments and lots of test to come. This will be a long slow process to determine what it is the cause of the boys sickness. Please continue to pray for the boys health and the wisdom of their doctors.

CODE 5

The doctors told me that as they worked with Carter's IV levels to regulate his hydration level it was my job to get him to drink something on his own. That was my main focus for 5 days. I tried everything including playing "drinking games" as I call them. On Friday the weather in Greenville was really nasty. The sky outside our window was dark, trees were blown over, it was raining very hard and power lines were down. I was getting Carter settled for the night so that the nurse could come in and do his medicines before bed when I heard an announcement in the hallway. I stepped out to hear better and they were issuing a CODE 5 telling all personnel to follow procedure. I assumed that it had to be weather related. In less than 5 minutes an announcement was made in our room advising all patients to close the blinds, gather valuables and evacuate to the hall. Carter's door flung open and his nurse grabbed his crib and IV pole and headed to the hall. She told be to get my valuables (She already had that covered as far as I was concerned) and to follow her. The weather service had issued tornado warning/watch for the area. So if things had not been rough enough Carter and I spent 2 hours in the hall with other sick children. I was nervous and called Stephen to make sure he and Cody were ok. I could not believe this was happening but all I could do was laugh out loud. That eased my fear and kept me from crying. The saying is the calm before the storm. Well I have had the storm so COME ON CALM.

Update on the Williams boys

Cody is 4yrs old and Carter turned 19 months last Friday. As some of you know the boys and I got a virus in early January. It lasted a few days and we all got over it. So we thought. Since that nasty virus the boys have not been the same. They have episodes where they throw up or have diarrhea or both every two weeks. At first the pediatricians said they were passing something back and forth. I sent one child and parent to one house and the other set to another. Still they got sick. Then the dr's said well they are relapsing from the virus and yet it continued. In fact it got worse. Cody was having these episodes every two weeks. I knew from the conversations with their doctors that there were 100 different strands of a virus. But COME ON---my children could not possibly get ALL 100 of them. The day it snowed we lost power. Cody was scared so he slept with me. At 4 am he woke from a deep sleep and began to vomit and did so until 10:30am. He had thrown up so much for so long that he began throwing up blood. I was done! I call their dr office and of course it was closed due to weather but the dr on call called me back. I told her that enough was enough and I wanted a GI referral. She agreed and told me what to do at home and they would see us in the am. The GI examined Cody and ordered lots of test. He first believed Cody might have what they call CVS-cyclic vomiting syndrome. He said they would treat him for that while they tried to rule out everything else. At that time his episodes were every 2-3 weeks. Since the appt they have gotten more frequent. Cody is now sick once a week. This past Friday the daycare director called to tell me that Cody woke from his nap vomiting. He was better on Sat am so we figured it was one of his normal episodes that comes and goes. Then Sunday evening Carter had diarrhea and then on the way home from his Mimi's house he began vomiting in the car. I stayed home with him Monday. He was whinny, clingy and really would not eat. At that time he was drinking and having wet diapers. Around 5pm he began to run a low grade fever. He went to bed on time and slept all night. He got up fairly early but his diaper was not that wet. He still appeared sleepy so I put him in the bed with me and rubbed his back and sang to him. He dosed off for a little bit but then coughed and began vomitting. I got him cleaned up and fixed a cup of gatorade to get some fluids in him. He refused the cup. He sat in my lap for about a while but then began to fall asleep again. He was very lathargic at this point so I figured we were going to probably need an IV. The way he looked scared me to death. I called his pediatrican and spoke with a nurse. She said that they would want to see him but would call me right back after talking with a dr to give me a time to come in. The dr called me back within 5 minutes. She listened to me discribe what was going on and due to their history she felt like we needed to go straight to the pediatric ER. She told me to grab my purse, his diaper bag and go and she would call ahead and let them know he was coming. They started an IV right away and drew blood. He was pitful. Stephen met me at the ER and it was a good thing because due to his medical background he is much better in these situations. Surprisingly I held it together even though I was a nervous wreck. He was on an IV over 2 hours and still would not produce urine. The results came back from his blood work and he was severly dehydrated. His level was under 50. The ER dr was surprised that he got that dehydrated that fast based on the few times he got sick. They checked his sugar as well with results under 40. This really concerned both the ER dr and Carter's pediatrician. She decided that he needed to be admitted because he had been in the ER for 5 hours on an IV and had not perked up nor produced urine. I stayed with Carter and Stephen went to pick up Cody and stay with him. He was so upset when Stephen told him that his brother was in the hospital. Stephen assured him that mommy was with him and that the dr's were taking good care of him. Tuesday night Stephen called me around 11:30 to tell me that Cody woke up from a deep sleep again vomitting. SERIOSULY could we catch a break. Cody had Diarrhea all day yesterday. Carter finally perked up late yesterday afternoon and would talk and sing with me but was drinking very littel on his own and not eating at all. The dr ordered lactinex and I was able to get him to take it with some applesauce. The dr's ordered that his IV drip be turned down to a 20. They wanted me to push his to drink on his own. Good luck with a indepentant 19 month old that feels horrible and is tired of being stuck every few hours. His sugar level has finally regulated. He has double ear infections and also tested positive for rotavirus. I changed 14 poop diapers yesterday. The GI dr came by yesterday to examine Carter and discuss both boys. She thinks that the symtoms are GI related but feels like there are possible underlying medabollic issues that may have been triggered by the inital virus. I have taken good notes and tried to find a common denominator between each boy and their episodes. It is very strange that they get sick at the same time or on the same day. Carter was allergy tested 2 weeks ago and his results were normal. No other kid at the daycare has gotten sick. No other family memeber that has cared for them has gotten sick. The did another finger stick this am to check his levels. Carter is not drink enough on his own to hydrate himself and his dyhration level dropped very low again. So the dr increased the IV drip back to 50 and said to hang tight we were not going home yet. They have run a BMP (basic metabolic panel) on both boys this week. Cody's results were normal. The results for the urine test that were ordered on the boys for comparision will not come back for a while. The dr's are very concerned about the boys but stumped because most of their test results are normal. This is very difficult to determine what direction to go next. The dr's said this may be a slow process finding out what the underlining issues are. They have ordered another finger stick in the am to check Carters levels again. Now as if we have not had enough going on I am feeling lousy and running a low grade fever. This is so not fair. I have not seen Cody since Sunday and my beautiful baby is in the hospital. I know that God is the great healer. I have prayed and called out to him to heal my babies or reveal to the dr's what is going on so they can help them. We will continue to deal with the episodes as they arise and try to keep them hydrated as much as possble. I have gotten lots of emails and calls from friends and family checking on us and letting us know that they are praying for us. For that I am thankful. Everyone ask what do you need or what can I do. I can tell you that Stephen and I are at our wits end and terribly frightened for our childrens health. When the dr's have no idea what is wrong or what to do that is scary. I am broken and scared. So here is what I need. I need a good old fashion Jesus healing. We need a miracle. I NEED for friends and family to drop to their knees and pray for answers and healing. It is very stressful. We moved back to SC last summer and have not sold our house in NC. We are still living with family and have new jobs. Both Stephen and I have had to take a lot of time off and in this economy we are so thankful to be employed (and want to stay that way). The cost of all these test and the hospital stay will be a financial challage. Pray for strength for Stephen and I as we care for these beautifl boys.